Today was a better day though. James has been cheerful for most of the day and was exuberant when he saw his Grandpa walk in. He was also glad to receive a visit from his friend Madison Stone (known to his friends as "Cool Hand Luke") and Madison's mom Sonya (known to her friends as "Cool Hand Luke's Mom). Also, James had his first follow up with Dr. Brock. The x-rays showed a perfectly aligned spine with all the hardware still in the right place. Needless to say, Dr. Brock was very pleased with James' progress. James also got a new front half of his brace, and it looks like it will be an improvement. The hole for the g-tube button has been moved, and we are hoping that will help reduce the leaking from the button. We shall see what happens on that front.
Thursday, September 9, 2010
Life with a straight back -- the grass might seem greener on the other side
Hello friends! So James has been home for a couple of days now and the transition has not been a cake walk. Mom and Dad are doing their very best to meet James' every need and that keeps them very busy. From administering pain meds to rotating James' position regularly to monitoring a very leaky G-tube button, life at home hasn't necessarily been easier. But we've been so blessed with visits from friends, meals delivered, and best of all, a visit from James' Grandpa (a.k.a. James' #1 charmer extraordinaire). Emotionally, James has had his ups an down. Last night (Wednesday) James hit a point where he seemed upset and frustrated by his limited movement and maybe confused as to why his back operates differently than usual. While James' straight back will benefit him in countless ways, there's going to be a period of adjustment while he is healing, and we are praying that James won't get too frustrated or mad during the process.
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